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Nonprofit Report: The Arthritis Foundation, Upstate New York Chapter Inc.

Non-Profit Report
Rochester Business Journal
August 8, 2014

The Arthritis Foundation, Upstate New York chapter, is part of regional and nationwide organizations that work to prevent, control and cure arthritis and related diseases. Since a merger in 2010, all foundation operations in New York State have been the responsibility of Arthritis Foundation, Northeast Region Inc., which has headquarters in Manhattan and also serves New Jersey and eastern Pennsylvania.

Through its network of staff and volunteers in six field offices, the Arthritis Foundation, Northeast Region, serves an estimated 7 million adults and 32,000 children. Within the larger regional organization, the upstate chapter serves a 31-county area that includes Rochester, Buffalo, Syracuse, Utica and Binghamton.

The national Arthritis Foundation, founded in 1948, is based in Atlanta. At the time of its founding, 7 million Americans had diagnosed arthritis. The foundation and the U.S. Centers for Disease Control and Prevention now estimate more than 50 million Americans have arthritis, rheumatoid arthritis or related conditions such as gout, lupus or fibromyalgia, and the number is expected to reach 67 million by 2030.

The Arthritis Foundation’s mission emphasizes information, education, advocacy and research. The foundation is the world’s largest private, non-profit contributor to research on arthritis and related conditions, and it has funded more than $450 million in research grants since 1948.

It offers education to enhance patient care and presents educational opportunities for the public to learn about arthritis and its various forms. Its website,, provides extensive information and resources to help people understand arthritis, live with it and get good treatment.

The Upstate New York chapter also provides information and referrals to services, and it advocates for legislation that increases access to care for people living with arthritis and related diseases. In recent years, the foundation upstate has begun making referrals to outside providers for exercise and fitness programs, rather than operating its own.

The Arthritis Foundation’s Northeast Region has an annual budget of more than $10 million and is governed by a board of directors with 17 members. In addition, the upstate chapter has a local advisory board and is looking for two or three executives to join it.

The foundation has approximately 50 employees in the Northeast Region and two in its local office at 3300 Monroe Ave., Suite 319, in Pittsford. The local office is led by Michelle Lea Vercruysse, manager of community development, and the Arthritis Foundation, Northeast Region, is led by Ingrid Montecino, president and CEO.

Financial record    Year ended Dec. 31, 2013
Revenue    %
Contributions and grants    $8,029,873    68
Proceeds of fundraising events    2,675,317    23
Net gain from sales of securities    484,995    4
Investment income    262,523    2
Workshop fees    196,214    2
Government grants    81,193    1
Other    97,006    1
Total revenue    $11,827,121    100

Expenses    %
Salaries and benefits    $4,736,471    38
Payments to affiliates    2,918,891    23
Office expenses    1,202,498    10
Grants to individuals    1,080,027    9
Grants to governments and organizations    600,000    5
Occupancy    585,045    5
Professional services    260,983    2
Information technology    254,430    2
Conferences and meetings    209,577    2
Travel    121,522    1
Other    493,093    4
Total expenses    $12,462,537    100
Excess (deficiency) of revenue over expenses    ($635,416)

Advisory Board
Kristin Coffey, chairwoman
Nancy Maynard, vice chairwoman
Mona Gupta, secretary
Mark Bender, immediate past chairman
Susan Gentile
Megan Jasinski
Rashmi Khadilkar M.D.
Thomas Miller
Robert Sherman M.D.
Steven Tranelli

8/8/14 (c) 2014 Rochester Business Journal. To obtain permission to reprint this article, call 585-546-8303 or email

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